FOXG1 syndrome

Hosting Hope

Hosting Hope

The Aidyn Mae Hope Fund charity event, presented by Vestcor, was held on Nov. 9 at The Garden Club of Jacksonville in Riverside. The event raised funds for research efforts into a Gene Replacement Therapy (GRT) for FOXG1 syndrome, an incredibly rare brain disorder with less than 1,000 cases diagnosed globally that affects normal brain […]

San Marco Family Undaunted by Diagnosis

San Marco Family Undaunted by Diagnosis

On a typical Wednesday morning, the San Marco home of Daryl and Tessa Gottlieb looks a lot like any other family home in Jacksonville. Quincy, 6, bounces between the living room couches and the kitchen. Aislyn, 18 months, has just awakened and is ready for her breakfast. And Aidyn, two and a half, is strapped […]